Having a life limiting illness isn’t easy. The hardest thing is handling my frustration over things I can’t control. It’s especially hard when you were so independent, head strong and you’re not chuffing old (well I think so!) so dealing with poor mobility is tough when you just want to do things but your body has other ideas.
My love of walking out in the countryside is a love that has changed because of my weakening mobility.
OK before MS really hit my mobility, I was no Ray Mears but I loved my walks for their sense of achievement and usually a cracking view. I’m now thinking, how accessible is it?
I’ve just come back from our family holiday to Cumbria. The Lake District is renowned for great scenery, hills galore and with this heat wave we’re having, it looks even lovelier. No wonder Beatrix Potter based her books there. It’s stunning.
I knew going on holiday was going to be hard emotionally. I don’t want to feel sad but inside I was crying as l feel I’ve lost the ability to love the countryside.
I’m reading a good book by Schwarz. She says “it took me a long time to understand if I want to heal emotional pain of my losses, I was going to have to work on changing the way I deal with life.” That is so true.
I’ve always been Miss Organiser. When you have a disability, you need to plan ahead even more. I looked at places I’d like to visit, places for little man and his daddy. I was selfishly interested in their accessibility. I knew conserving my energy was key to helping mummy recharge. I knew I wanted to see the countryside and researched into an off road scooter which would not only conserve my energy as well accessing the countryside. Freedom Wizard is a charity which is worth looking at. The hardest thing is handling my frustration over things I can’t control. It’s especially hard when you were so independent, head strong and not chuffing old (well I think so!) so dealing with poor mobility is tough when you just want to do things but your body has other ideas.
Not to sound rude, just because you’re disabled you don’t always want group organised activities. You just want to do your own thing. Hiring a tramper off road scooter from the National Trust, was ideal. I got to experience the countryside. I hope hiring these become the norm as it’s fab.
I might not be sprightly on my feet anymore but hiring the scooter meant I had wheels! I could travel. And travel I did!
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